Exacerbations, or flare-ups, are an unavoidable part of having COPD. And sometimes they are severe enough to require a hospital stay. That's the bad news. But the good news is exacerbations can be treated, and there are steps you can take to avoid getting too sick too often. Jan, Jean, and our health experts talk about all things exacerbations and making a successful transition from hospital to home.
Visit our website for links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
My COPD Action Plan, from COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
For more information about support groups for COPD:
Healthline's list of support groups: https://www.healthline.com/health/copd/support-groups-for-severe-copd
For more information about flare-ups:
WebMD: https://www.webmd.com/lung/copd/what-is-a-copd-flare-up
Healthline: https://www.healthline.com/health/copd/steps-for-managing-copd-flare
MedlinePlus.gov: https://medlineplus.gov/ency/patientinstructions/000698.htm
For more information about making the transition from hospital to home:
COPD Foundation: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Hospital-to-Home.aspx
For more information on COPD medications and oxygen therapy:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
COPD Foundation information on oxygen therapy: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association information on oxygen therapy: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
Keeping healthy with COPD can be challenging. But for people like Jean, Jan, and John, COPD doesn't have to get in the way of life. It just means life looks a little different. Things like exercise, nutrition, and preventive care require more attention and planning, but these healthy habits (and good adherence to treatment regimens) can help people with lung disease continue to do the things they love— even in the middle of a global pandemic.
Visit our website links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
My COPD Action Plan, from COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
For more information about support groups for COPD:
Healthline's list of support groups: https://www.healthline.com/health/copd/support-groups-for-severe-copd
For more information on exercise:
Pocket Consultant Guide from the COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
COPD Foundation information on pulmonary rehabilitation: https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
National Institutes of Health information on pulmonary rehab: https://www.nhlbi.nih.gov/health-topics/pulmonary-rehabilitation
For more information on nutrition:
Cleveland Clinic: https://my.clevelandclinic.org/health/articles/9451-nutritional-guidelines-for-people-with-copd
Temple Health: https://www.templehealth.org/about/blog/5-ways-maintain-healthy-copd-diet
For more information on medications and oxygen therapy for COPD:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
COPD Foundation information on oxygen therapy: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association information on oxygen therapy: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
For some people, COPD gets worse over time; quitting smoking and lifestyle changes only help so much. So when lung disease gets to a more advanced stage, other interventions are needed. John, Jean and Jan talk about what it's like to use oxygen and how to take your equipment with you on vacation. And Dr. Mina Pirzadeh walks us through lung transplants and other procedures you may never have heard of before.
Visit our website links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
For more information about traveling with oxygen:
American Lung Association interactive: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy/traveling-with-oxygen
For more information about oxygen therapy:
COPD Foundation: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
For more information about lung volume reduction and lung transplants:
COPD Foundation video: https://www.youtube.com/watch?v=8DgsqYjjjmY
Cleveland Clinic: https://my.clevelandclinic.org/health/treatments/13794-lung-volume-reduction-surgery-lvrs
Mayo Clinic: https://www.mayoclinic.org/tests-procedures/lung-transplant/about/pac-20384754
For more information about alpha one antitrypsin deficiency:
Alpha1 Foundation: https://www.alpha1.org/
COPD is a lifelong condition, but it doesn't have to be a progressive one. The first and best thing someone can do is to quit smoking. Jan and Jean share their experience giving up cigarettes, and we cover the medications, therapies, and healthy lifestyle changes that can help slow or halt the worsening of lung disease. Plus: what babies, opera singers and harmonica players can teach us about breathing.
Visit our website links and resources: HealthUnmuted.com
For more information about smoking cessation:
COPD Foundation: https://www.copdfoundation.org/
US National Quitline: +1-800-QUIT NOW (+1-800-784-8669)
Smokefree.gov: https://smokefree.gov/
Centers for Disease Control and Prevention (CDC): https://www.cdc.gov/tobacco/quit_smoking/index.htm
For more information about medications and pulmonary rehab:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
COPD Foundation information on pulmonary rehabilitation: https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
For more information about patient or pharmaceutical assistance programs:
RxAssist Patient Assistance Program finder: https://www.rxassist.org/
Medicine Assistance Tool: https://mat.org/
Medicare.gov Pharmaceutical Assistance Program finder: https://www.medicare.gov/plan-compare/#/pharmaceutical-assistance-program/states?lang=en&year=2022
American Lung Association list of financial assistance programs: https://www.lung.org/help-support/financial-assistance-programs
Chronic obstructive pulmonary disease, or COPD, affects millions of people around the world - and millions more may be undiagnosed. So what exactly is COPD? In this episode, you'll get to know your lungs better, learn about symptoms and causes, risk factors, and more. And you'll meet John and Jan, who share their experiences living with and managing the disease.
What is COPD?
What symptoms are associated with COPD?
What is a spirometer? How does it confirm a diagnosis of COPD?
What resources are available?
Visit our website for more information: HealthUnmuted.com
For more information about COPD:
COPD Foundation: https://www.copdfoundation.org/
Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/copd/symptoms-causes/syc-20353679
Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/8709-chronic-obstructive-pulmonary-disease-copd
National Institutes of Health: https://www.nhlbi.nih.gov/health-topics/copd
For one-on-one and community support:
COPD Community Support toll-free support line: +1(866)316-2673
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
American Lung Association's Better Breathers Club: https://www.lung.org/help-support/better-breathers-club
Exacerbations, or flare-ups, are an unavoidable part of having COPD. And sometimes they are severe enough to require a hospital stay. That's the bad news. But the good news is exacerbations can be treated, and there are steps you can take to avoid getting too sick too often. Jan, Jean, and our health experts talk about all things exacerbations and making a successful transition from hospital to home.
Visit our website for links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
My COPD Action Plan, from COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
For more information about support groups for COPD:
Healthline's list of support groups: https://www.healthline.com/health/copd/support-groups-for-severe-copd
For more information about flare-ups:
WebMD: https://www.webmd.com/lung/copd/what-is-a-copd-flare-up
Healthline: https://www.healthline.com/health/copd/steps-for-managing-copd-flare
MedlinePlus.gov: https://medlineplus.gov/ency/patientinstructions/000698.htm
For more information about making the transition from hospital to home:
COPD Foundation: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Hospital-to-Home.aspx
For more information on COPD medications and oxygen therapy:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
COPD Foundation information on oxygen therapy: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association information on oxygen therapy: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
Keeping healthy with COPD can be challenging. But for people like Jean, Jan, and John, COPD doesn't have to get in the way of life. It just means life looks a little different. Things like exercise, nutrition, and preventive care require more attention and planning, but these healthy habits (and good adherence to treatment regimens) can help people with lung disease continue to do the things they love— even in the middle of a global pandemic.
Visit our website links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
My COPD Action Plan, from COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
For more information about support groups for COPD:
Healthline's list of support groups: https://www.healthline.com/health/copd/support-groups-for-severe-copd
For more information on exercise:
Pocket Consultant Guide from the COPD Foundation: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#MyCOPDActionPlan
COPD Foundation information on pulmonary rehabilitation: https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
National Institutes of Health information on pulmonary rehab: https://www.nhlbi.nih.gov/health-topics/pulmonary-rehabilitation
For more information on nutrition:
Cleveland Clinic: https://my.clevelandclinic.org/health/articles/9451-nutritional-guidelines-for-people-with-copd
Temple Health: https://www.templehealth.org/about/blog/5-ways-maintain-healthy-copd-diet
For more information on medications and oxygen therapy for COPD:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
COPD Foundation information on oxygen therapy: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association information on oxygen therapy: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
For some people, COPD gets worse over time; quitting smoking and lifestyle changes only help so much. So when lung disease gets to a more advanced stage, other interventions are needed. John, Jean and Jan talk about what it's like to use oxygen and how to take your equipment with you on vacation. And Dr. Mina Pirzadeh walks us through lung transplants and other procedures you may never have heard of before.
Visit our website links and resources: HealthUnmuted.com
List of Resources
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
For more information about traveling with oxygen:
American Lung Association interactive: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy/traveling-with-oxygen
For more information about oxygen therapy:
COPD Foundation: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Oxygen-Therapy.aspx
American Lung Association: https://www.lung.org/lung-health-diseases/lung-procedures-and-tests/oxygen-therapy
For more information about lung volume reduction and lung transplants:
COPD Foundation video: https://www.youtube.com/watch?v=8DgsqYjjjmY
Cleveland Clinic: https://my.clevelandclinic.org/health/treatments/13794-lung-volume-reduction-surgery-lvrs
Mayo Clinic: https://www.mayoclinic.org/tests-procedures/lung-transplant/about/pac-20384754
For more information about alpha one antitrypsin deficiency:
Alpha1 Foundation: https://www.alpha1.org/
COPD is a lifelong condition, but it doesn't have to be a progressive one. The first and best thing someone can do is to quit smoking. Jan and Jean share their experience giving up cigarettes, and we cover the medications, therapies, and healthy lifestyle changes that can help slow or halt the worsening of lung disease. Plus: what babies, opera singers and harmonica players can teach us about breathing.
Visit our website links and resources: HealthUnmuted.com
For more information about smoking cessation:
COPD Foundation: https://www.copdfoundation.org/
US National Quitline: +1-800-QUIT NOW (+1-800-784-8669)
Smokefree.gov: https://smokefree.gov/
Centers for Disease Control and Prevention (CDC): https://www.cdc.gov/tobacco/quit_smoking/index.htm
For more information about medications and pulmonary rehab:
COPD Foundation list of treatments and medication: https://www.copdfoundation.org/Learn-More/I-am-a-Person-with-COPD/Treatments-Medications.aspx
COPD Foundation information on pulmonary rehabilitation: https://www.copdfoundation.org/Learn-More/Pulmonary-Rehabilitation/What-is-Pulmonary-Rehabilitation.aspx
WebMD - What are Treatments for COPD? https://www.webmd.com/lung/copd/what-are-treatments-for-copd
Healthline - COPD Drugs: A List of Medications to Help Relieve Your Symptoms: https://www.healthline.com/health/copd/drugs
For more information about patient or pharmaceutical assistance programs:
RxAssist Patient Assistance Program finder: https://www.rxassist.org/
Medicine Assistance Tool: https://mat.org/
Medicare.gov Pharmaceutical Assistance Program finder: https://www.medicare.gov/plan-compare/#/pharmaceutical-assistance-program/states?lang=en&year=2022
American Lung Association list of financial assistance programs: https://www.lung.org/help-support/financial-assistance-programs
Chronic obstructive pulmonary disease, or COPD, affects millions of people around the world - and millions more may be undiagnosed. So what exactly is COPD? In this episode, you'll get to know your lungs better, learn about symptoms and causes, risk factors, and more. And you'll meet John and Jan, who share their experiences living with and managing the disease.
What is COPD?
What symptoms are associated with COPD?
What is a spirometer? How does it confirm a diagnosis of COPD?
What resources are available?
Visit our website for more information: HealthUnmuted.com
For more information about COPD:
COPD Foundation: https://www.copdfoundation.org/
Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/copd/symptoms-causes/syc-20353679
Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/8709-chronic-obstructive-pulmonary-disease-copd
National Institutes of Health: https://www.nhlbi.nih.gov/health-topics/copd
For one-on-one and community support:
COPD Community Support toll-free support line: +1(866)316-2673
COPD360Social, social media support group: https://www.copdfoundation.org/COPD360social/Community/Get-Involved.aspx
American Lung Association's Better Breathers Club: https://www.lung.org/help-support/better-breathers-club
Communication is vital for all parts of life, but Parkinson’s disease can greatly impact cognition and speaking.
That’s where a speech and language pathologist comes in - helping with common problems like drooling,swallowing, concentration and talking.
In this episode, we hear from a speech and language pathologist about different ways to improve communication and swallowing difficulties after diagnosis.
We also hear from people with Parkinson’s disease about what it’s like to live with these challenges, and what adaptations have been most helpful in overcoming them.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Voice and swallowing support
Speech Therapist finder - Parkinson’s voice project
LSVT Program Finder
Live Home Practice Sessions - Parkinson’s Voice Project
Speech & Swallowing Issues - Parkinson’s Foundation
Adaptive Tools
Pocket talker device - Amazon
Community Groups:
Choirs improving PD symptoms
PD Avengers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
Food is an important part of everyone’s life. Adjusting your diet while managing a chronic illness can be a challenge.
In this episode, we speak to a dietician about the foods and diets that are often recommended for people with Parkinson's.
We also hear about tips and tools to make cooking and eating a little easier, especially while experiencing motor and non-motor symptoms.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Diet and nutrition
Guide to eating a Mediterranean diet - Michael J Fox Foundation
Meal time booklet - Parkinson’s Foundation
Information of pro and prebiotics - Parkinson's Foundation
Common symptoms
Studies to show constipation as common symptom of Parkinson’s disease - Study 1 and Study 2
Webinar on gut related issues in Parkinson’s Disease - Michael J Fox Foundation
Adaptive Tools
Swivel Spoons - Various types available on Amazon.com
Lift steady table ware - Product website
Wrist weights - Various types available on Amazon.com
Weighted bracelet - Product website
Podcast
When Life Gives You Parkinson’s Podcast
Acid reflux podcast
Community Group
PD Avengers
Get all the links and the episode transcript by visiting the website here.
The Parkinson’s Disease Podcast is made possible with support from Altoida.
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
Note: Links and resources provided are for informational purposes only. There is no commercial relationship between the organizations referenced and the publisher of this podcast
