When it comes to slowing down the progression of Parkinson’s disease, exercise is critical. But you don't need to be a lifelong athlete to benefit.
In this episode, we hear why exercise is so important, and some easy ways people living with Parkinson’s can get started today.
We also cover the importance of physical and occupational therapy, and hear tips on how home adaptations can help manage symptoms.
For more links and resources, visit our website at HealthUnmuted.com
Resources
The benefits of exercise
Study to show exercise improves depression in Parkinson’s patients
Benefits of exercise for slowing parkinson’s disease - Parkinson's Foundation
Downloadable resources on benefits of exercise for PD - Stanford Medicine
Why you should exercise - Parkinson’s Foundation
Terms Mentioned:
GERD, Gastroesophageal reflux disease - Mayo Clinic
Exercise guides
Skills and Wellness channel - Youtube - Mobility videos
Parkinson’s foundation - Youtube - Fitness Friday videos
Step by Step Physio Movements - Parkinson’s Wellness Recovery
MENTOR Program
Exercise videos - Brian Grant Foundation
Home Adaptations
Easy changes to make around the house - Davis Phinney Foundation Video
Bathroom and grooming aids - Parkinson’s Foundation
Webinar on creating a safe home environment - Parkinson’s Foundation
Podcast
Parkinson's Podcast by the Davis Phinney Foundation
Community Group
PD Avengers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
There's no cure for Parkinson's disease, but there are ways to manage it and treat symptoms.
In this episode, we explore how different types of medications can help, and the importance of clinical trials in progressing treatment options.
We hear from people who are living with Parkinson’s disease about their medication journeys.
We also discuss an alternative surgical treatment that is available: deep brain stimulation.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Medication
Medication explained - Mayo Clinic
Webinar about on/off time - Michael J Fox foundation
Parkinson’s Drugs- Parkinson’s UK Resource
FDA Approved Medications- APDA
Terms Mentioned
Carbidopa-levodopa - Mayo Clinic
Sinemet, Parcopa, Duopa and other brand names for Sinemet - on Medscape
Dopamine agonists (pramipexole, ropinirole) - Mayo Clinic
Dyskinesia- Parkinson Foundation
Deep Brain Stimulation - Mayo Clinic
Alternative Surgical Treatment Option
Deep Brain Stimulation - Parkinson's Org
Clinical Trials
Clinical Trials- Parkinson’s Foundation
Clinical Trials Recruiting- Cure Parkinsons
Podcasts
Parkinson's Foundation Podcast
Community Group
PD Avengers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
Does Parkinson’s only affect older people?
A common misconception is that Parkinson’s disease only affects people in the later stages of life, but that isn’t always the case.
Young-Onset Parkinson’s disease refers to people who are diagnosed much earlier, sometimes in their 20’s or 30’s.
In this episode, we hear from three people who are living with Young-Onset Parkinon’s disease about their experiences, and the impact on and adjustments to their careers, health decisions and family life after diagnosis.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Talking about Parkinson's
Talking to your Children about Parkinson’s - Michael J Fox Foundation
My parent has parkinson’s fact sheet - Parkinson’s Foundation
Talking to your employer about PD - Parkinson’s Foundation
Terms from this Episode
Hand Dystonia : "excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder" - Dystonia Foundation
Podcasts
Learning About Parkinson's Podcast
Young Onset 101 podcast episode - Parkinson’s Foundation
Parkinson's Life Podcast
Community Group
PD Avengers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
Parkinson’s disease can’t be diagnosed through a simple blood test or scan. After a referral from a primary care doctor, it often takes visits to a neurologist or movement disorder specialist before receiving a clinical diagnosis.
In this episode, we speak to healthcare providers and those living with the disease about the diagnostic process. We also explain how to build a Parkinson’s care team - a group of healthcare providers that provide support after diagnosis.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Building a care team
Movement disorder specialist directory - International Parkinson’s and Movement Disorder Society
Find a PD expert care center - Parkinson’s Foundation
Building a care team - Michael J Fox Foundation
Support after diagnosis
Early signs of PD- Brain and Life Magazine (AAN)
Guide to the early years after diagnosis - Michael J Fox Foundation
Terms Mentioned
DaTscan - test to help in the diagnosis of Parkinson’s, read more on APDA
Podcast
The Michael J Fox Foundation Parkinson’s Podcast
Community Group
PD Avengers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)
Parkinson’s is a degenerative condition which is often associated with tremors, imbalance and rigidity, but it affects every person differently.
In this first episode of the Parkinson’s Disease Podcast, we’ll start with the basics:
What is Parkinson’s Disease?
Who is at risk of developing Parkinson’s?
What are some early signs of the condition?
We’ll also hear what it’s like to live with Parkinson’s disease from those diagnosed.
For more links and resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!
Resources
What is Parkinson’s?
Webinar on recognising the early signs of Parkinson’s - Parkinson’s Foundation
Other parkinsonion conditions - Parkinson’s Foundation
Genetic causes of Parkinson’s - Michael J Fox Foundation
Webinar on sleep disorders and acting out dreams - Michael J Fox Foundation
Terms Mentioned
Dopamine - WebMD
Tremor and Resting Tremor - Parkinson's Foundation
Rapid eye movement (REM) sleep behavior disorder - Mayo Clinic
Olfactory nerve - nerve relating to the sense of smell
Hoehn & Yahr staging - Parkinson's Foundation
Axial symptoms - these include symptoms such as walking disorders, posture disorders, and speech and swallowing disorders
Helpline
Parkinson’s Foundation Helpline - 1-800-4PD-INFO (473-4636)
Podcast
Substantial Matters: Life and Science of Parkinson’s Podcast
Community Group
PD Avengers
Guests’ Books
Ending Parkinson’s Disease: a Prescription for Action by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD
References
(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
If you love someone with Alzheimer's disease, you know that caregiving can be complicated and challenging. But you are not alone. There are many resources to help on your journey. In this episode, we hear from experts and other caregivers about some important dos and don'ts, and share resources where you can find more information.
For even more resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
Part 1: Making Changes to Environment
Home safety tips from MayoClinic
Environmental changes (Social Care Institute for Excellence)
Grants and resources to help make changes to the home (Alzheimer's Society, UK)
Part 2: Helping Someone with Personal Care
NIH
BetterHealth (Australia)
Alzheimer's Association
Social Care Institute for Excellence (UK)
MayoClinic
WebMD, handling outbursts
Alzheimer's Associations, managing anger
Part 3: Things Not to Do/Say
Alzheimer's Society
Alzheimer's San Diego
Part 4: Support for Caregivers
Coping with caregiver depression
Managing stages of Alzheimer's disease
Alzheimer's Association support for caregivers (US)
Alzheimer’s Association Local Chapters (US)
Alzheimer's Society support for caregivers (UK)
Alzheimer’s Society support groups (UK)
Dementia Friendly America
Healthline: How to find caregiver support groups (US)
Alzheimer's Speaks - Resources and links
Alz Authors - Books and Podcasts
Part 5: Links to information about advanced care planning
Finding geriatric care managers
ElderCare Locator from the US Administration on Aging
Alzheimer's Association chapters
Alzheimer's Association guide for advance planning
Finding your nursing home ombudsman (USA)
Alzheimer's Society (Canada)
Alzheimer's Society (UK)
Links to information about clinical trials:
Alzheimer's.gov
Alzheimer's Association
Links to Guest’s Books
Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Dr Phillip Sloane - Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia
Dr. Jane Mullins - Finding the Light in Dementia: A Guide for Families, Friends and Caregivers
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
Medication for Alzheimer's has been around since the 1980s, and for some people, it can be an important part of managing symptoms. In part 2 of Treatment for Alzheimer's, we explore some pharmaceutical options, as well as therapy to improve motor, speech, and language skills.
For even more resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
For information about medication
Overview of medications for Alzheimer's disease
FDA approval for Aducanumab
About Aducanumab
About Cholinesterase Inhibitors
For information about therapies
American Physical Therapy Association
American Speech Language and Hearing Association
Total Health Works
Speech Therapy Works
Managing eating and swallowing challenges
For information about clinical trials:
Alzheimer's.gov
Alzheimer's Association
References about Aducanumab
NIH article
Alzheimer's Association article
Nature.com article
Guest’s Books
Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Dr Phillip Sloane - Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
There's no cure for Alzheimer's disease, but there are ways to manage it and treat symptoms. In part 1 of Treating Alzheimer's, we hear from people living with the disease about the lifestyle changes they've adopted to continue leading active, social lives.
Using a podcast app? For even more resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
For information about lifestyle changes
Alzheimer’s Society
HelpGuide
Healthline
The MIND Diet
Memory Cafe directory
Patient Support and Advocacy Groups
Alzheimer’s Speaks
Alz Authors
Alzheimer’s Association Local Chapters (US)
Alzheimer’s Society support groups (UK)
Dementia Friendly America
Guest’s Books
Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Dr Phillip Sloane - Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
Despite significant breakthroughs in medical knowledge, Alzheimer's disease is still shrouded in stigma and misconception. In this episode, we hear personal stories of what living with Alzheimer's is like. We hear from people who are in the early stages and managing well, as well as carers and medical professionals working with advanced Alzheimer’s patients. If you love someone with advanced Alzheimer’s disease, stay tuned for an upcoming episode on how to manage your new normal– especially when the going gets tough.
For even more resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
Patient Support and Advocacy Groups
Alzheimer’s Speaks
Alz Authors
Alzheimer’s Association Local Chapters (US)
Alzheimer’s Society support groups (UK)
Dementia Friendly America
Caregiver support
Family Caregiver Alliance
Memory Cafes
Memory Cafe directory
Guest’s Books
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
The first case of Alzheimer's disease was diagnosed in the early 1900s via autopsy. Science has come a long way since then, and in the not-too-distant future, we may be able to tell if someone's at risk before they even develop symptoms. In the second episode of the Alzheimer’s Podcast, we explore the latest diagnostic methods and hear from people and their loved ones about how they coped with the shock of diagnosis.
For even more resources, visit our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
History of Alzheimer's disease
Bright Focus
Alzheimer's Society
Diagnosis information and what to expect at an appointment
National Institute of Aging
Alzheimer’s Society
Alzheimer's Association
Mayo Clinic
Mild Cognitive Impairment (MCI)
Alzheimer's Association
Cleveland Clinic
Caregiver support
Family Caregiver Alliance
Memory Cafes
Memory Cafe Directory
Guest’s Books
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope
Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
Alzheimer's disease affects over 6 million Americans and counting, yet no two people with the disease are alike. Our understanding of Alzheimer’s has changed a lot over the years. In this first episode, we start with the basics: causes, risk factors, symptoms, how it affects the brain– and explain the relationship between Alzheimer's disease and dementia.
Are you viewing this on a podcast app? If so, you can access links to even more resources on our website at HealthUnmuted.com
What did you think of this episode? We’d love to hear from you.
Please visit healthunmuted.com/feedback to let us know!
Resources
For information about Alzheimer's Disease
Alzheimer's Association
National Institutes of Health (NIH)
Healthline
Bright Focus, for more information about amyloid and tau
MayoClinic, for more information about disease progression
Patient Support and Advocacy Groups
Alzheimer’s Speaks
Alz Authors
Alzheimer’s Association Local Chapters (US)
Alzheimer’s Society support groups (UK)
Dementia Friendly America
HFC
Guest’s Books
Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
Dr Phillip Sloane - Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia
Get all the links and the episode transcript by visiting the website here.
This episode is made possible with support from Altoida.
Alzheimer's affects at least 30 million people worldwide, not including of course, friends, family, and other loved ones, and that number is growing as we live longer. In this series, we talk to people living with Alzheimer's, caregivers and health experts about symptoms, causes, existing treatments, ongoing research into new therapies, and ways you can lower your risk of developing Alzheimer's or any form of dementia.
And we discuss how caregivers and loved ones can cope with Alzheimer's, too.
Listen, follow and share this series with the people in your life.
Follow: Website | Twitter | LinkedIn | Facebook | Instagram
For informational purposes only. Please consult a registered health professional for advice.
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